My brother is here - his work have been very good about giving him some time off - and John has been here too so that's been a help. I'm not sure how Mum and I would have coped if it was just the two of us.

We don't know when it will happen, just that it's likely to be soon. He has gone downhill rapidly and isn't really there anymore. He can't communicate with us apart from fidgeting in his bed and making distressed sounds from time to time. The hospice staff has been great with him and with us. He's so lucky to be in there as they only have 10 beds available.

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